Sunday, September 04, 2016
Wet Like Fish
It's my selfish side that wants them to shower. I don't want to risk the poop in the tub. I don't want to have to clean up the INCREDIBLE mess of water they make. I don't want to sit and WAIT for them to have enough time playing.
I'm a dick like that.
The trade off is the struggle. Sometimes they're super into it. They think it's fun, it's different. They don't mind getting under the shower head and they laugh a lot. Sometimes, not so much. Sometimes it is a FIGHT and if you've ever tried to FORCE someone under the shower head while not getting soap in their eyes you realize that the proposition of a shower is a dodgy one at best.
This morning, however, I embarked on SHOWERQUEST as I'm going to start calling it with what I'd call a medium level of success. There was a little grumbling about washing their hair but overall clean was accomplished in an efficient manner and we are all ready for out day should we end up going out for a adventure.
This brings me to the true down side of SHOWERING 12 year old boys. They're tall. They're VERY VERY TALL now. Whether they are happy or Defcon 1 about it, the gravity of the shower of water raining down doesn't change. Reach your arm up to rinse their hair under the shower and you've just created the autobahn for water to run the length of your arm, into your armpit, soaking into your bra and shirt. It's unavoidable.
It looks like this.
I know, I'm a major artist.
So I sit here, soaked and moist in unpleasant places content in the knowledge that my kids are clean and we're ready for today. I accomplished all of this early so that they had time for their hair to dry before we went out.
It occurs to me, though, now I could really use a shower...
Wet Like Fish
It's my selfish side that wants them to shower. I don't want to risk the poop in the tub. I don't want to have to clean up the INCREDIBLE mess of water they make. I don't want to sit and WAIT for them to have enough time playing.
I'm a dick like that.
The trade off is the struggle. Sometimes they're super into it. They think it's fun, it's different. They don't mind getting under the shower head and they laugh a lot. Sometimes, not so much. Sometimes it is a FIGHT and if you've ever tried to FORCE someone under the shower head while not getting soap in their eyes you realize that the proposition of a shower is a dodgy one at best.
This morning, however, I embarked on SHOWERQUEST as I'm going to start calling it with what I'd call a medium level of success. There was a little grumbling about washing their hair but overall clean was accomplished in an efficient manner and we are all ready for out day should we end up going out for a adventure.
This brings me to the true down side of SHOWERING 12 year old boys. They're tall. They're VERY VERY TALL now. Whether they are happy or Defcon 1 about it, the gravity of the shower of water raining down doesn't change. Reach your arm up to rinse their hair under the shower and you've just created the autobahn for water to run the length of your arm, into your armpit, soaking into your bra and shirt. It's unavoidable.
It looks like this.
I know, I'm a major artist.
So I sit here, soaked and moist in unpleasant places content in the knowledge that my kids are clean and we're ready for today. I accomplished all of this early so that they had time for their hair to dry before we went out.
It occurs to me, though, now I could really use a shower...
Sunday, May 01, 2016
Diamond Birthdays Part Two
We took them bowling, because we know they like bowling as it's something they do for Special Olympics. We made it a little family bowling party, and since it was a league night the place was hoppin' and fun.
Their favorite bit might have been the food, as we ordered apps and more apps and just ate this and that and the other thing all night, nibbling on junk food in a way that 12 year old boys can only dream of.
It's weird to have kids that you're guessing what they like. At various points that evening they would get aggravated. You want to have a birthday party for them that's special, that they like. But when they can't TELL you want they like, you're just winging it the best you can.
There were definitely some happy times, though. Big smiles and giggles but who knows if this is how they wanted to spend their birthday? I don't have any clue.
I changed diapers a couple of times for my twelve year olds, in the bowling alley bathrooms. Despite that, my two little boys ate lots of treats picked out just for them, drank their weight in Pepsi and bowled their little hearts out. I think they had fun.
It's harder and harder, the older they get. The gap between them and the children who aren't disabled becomes more and more apparent, things will get more and more challenging. It's hard to think about my little tiny boys becoming teenagers. It's hard to imagine them being 12.
But regardless of any of that, my trepidations of them growing but not growing up, their aggravation over the noise, the diapers, the stress of having TWO severely autistic little boys out in public, we six were out for a night out and we had fun.
We ate junk food and there were presents and it was a birthday after all. We six were together and in the end, that's all that we need to make a day perfect.
Happy Birthday to Miles and Charlie, the first living twins ever born in my family. I love you guys so much. You have no idea.
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Diamond Birthdays Part Two
We took them bowling, because we know they like bowling as it's something they do for Special Olympics. We made it a little family bowling party, and since it was a league night the place was hoppin' and fun.
Their favorite bit might have been the food, as we ordered apps and more apps and just ate this and that and the other thing all night, nibbling on junk food in a way that 12 year old boys can only dream of.
It's weird to have kids that you're guessing what they like. At various points that evening they would get aggravated. You want to have a birthday party for them that's special, that they like. But when they can't TELL you want they like, you're just winging it the best you can.
There were definitely some happy times, though. Big smiles and giggles but who knows if this is how they wanted to spend their birthday? I don't have any clue.
I changed diapers a couple of times for my twelve year olds, in the bowling alley bathrooms. Despite that, my two little boys ate lots of treats picked out just for them, drank their weight in Pepsi and bowled their little hearts out. I think they had fun.
It's harder and harder, the older they get. The gap between them and the children who aren't disabled becomes more and more apparent, things will get more and more challenging. It's hard to think about my little tiny boys becoming teenagers. It's hard to imagine them being 12.
But regardless of any of that, my trepidations of them growing but not growing up, their aggravation over the noise, the diapers, the stress of having TWO severely autistic little boys out in public, we six were out for a night out and we had fun.
We ate junk food and there were presents and it was a birthday after all. We six were together and in the end, that's all that we need to make a day perfect.
Happy Birthday to Miles and Charlie, the first living twins ever born in my family. I love you guys so much. You have no idea.
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Tuesday, April 16, 2013
The Nadirs of Autism
Thus, two more days at home. By Sunday all four of them had gone stir crazy.
On Sunday it rained. It started out pretty mellow, Charlie got me up very early and we sat up and waited for the lawn care people to show up and do their thing. Eventually I drug the rest of the little humans out of bed and figured, mellow day is going well.
At breakfast the wheels came off slightly. Everyone was a bit discombobulated but it didn't seem TOO bad. However as the day progressed and our inactivity apparently became more apparent, the twins patience with this waned. As did Julias.
Charlie's method of coping was thrashing and screaming. Eventually he just gave it up that he needed a nap and went to his room and slept off the crazy.
Miles however decided to engage in NOTHING WILL MAKE ME HAPPY NO MATTER WHAT YOU DO. I tried getting the four of them to play Candyland with me. The big boy politlely declined (ok he's ten) and the girl wouldn't sit still or pay attention, Charlie wouldn't pay attention or try. Miles understood how to play. This was his twenty minutes of good behavior for the day. He played, was Candyland grand champion.
The rest of the day was spent fighting with Charlie, fighting with Julia, fighting over toys, screaming and sobbing randomly, and making this noise that sounds like a cat in heat. The noise infuriates me and goes RIGHT THROUGH ME. He knows this. So he keeps it up.
In fairness to me, I lasted though one and a half kiddie movies before I started yelling and losing my cool. Seriously, what is it that I can't sit and have my foot up and let me kids watch movies in peace? I can't. Because watching any kind of TV is some sort of drama.
Autism is so unfair. It makes the smallest of things impossible sometimes. It infuriates me. I shouldn't have to sit and endure two children screaming for no reason. My other children shouldn't have to endure two children screaming for no reason.
And more importantly, my children screaming shouldn't be experiencing whatever the hell it is that is making them scream.
That's the thing though. You don't know what's wrong. IT COULD BE NOTHING. THEY MIGHT LIKE THE SOUND. It's like some sick joke, see that child sobbing hysterically? Nothing wrong with him. Just having a sensory moment.
As a mother, it's devastating. My child is hysterical. And I cannot fix it. There should be a fix. I should be able to hold them or sing to them or get them candy and there just IS NO FIX.
I ended up taking a shower and standing in the shower and sobbing. Afterward apologizing to Miles for yelling at him, and for his autism. I know I didn't "do" it, but still, I made him. Any mother with a child that has a congential problem will probably tell you, the guilt of that eats at you every minute of every day. "What did I do wrong?" Probably nothing. Or I passed on bad genes and I couldn't help it.
Sunday ended with early bed times and Monday school started back up. Life is normal again.
I'll have another day like that, some day sooner rather than later. And I'll cry a lot.
Because it's all I can do.
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The Nadirs of Autism
Thus, two more days at home. By Sunday all four of them had gone stir crazy.
On Sunday it rained. It started out pretty mellow, Charlie got me up very early and we sat up and waited for the lawn care people to show up and do their thing. Eventually I drug the rest of the little humans out of bed and figured, mellow day is going well.
At breakfast the wheels came off slightly. Everyone was a bit discombobulated but it didn't seem TOO bad. However as the day progressed and our inactivity apparently became more apparent, the twins patience with this waned. As did Julias.
Charlie's method of coping was thrashing and screaming. Eventually he just gave it up that he needed a nap and went to his room and slept off the crazy.
Miles however decided to engage in NOTHING WILL MAKE ME HAPPY NO MATTER WHAT YOU DO. I tried getting the four of them to play Candyland with me. The big boy politlely declined (ok he's ten) and the girl wouldn't sit still or pay attention, Charlie wouldn't pay attention or try. Miles understood how to play. This was his twenty minutes of good behavior for the day. He played, was Candyland grand champion.
The rest of the day was spent fighting with Charlie, fighting with Julia, fighting over toys, screaming and sobbing randomly, and making this noise that sounds like a cat in heat. The noise infuriates me and goes RIGHT THROUGH ME. He knows this. So he keeps it up.
In fairness to me, I lasted though one and a half kiddie movies before I started yelling and losing my cool. Seriously, what is it that I can't sit and have my foot up and let me kids watch movies in peace? I can't. Because watching any kind of TV is some sort of drama.
Autism is so unfair. It makes the smallest of things impossible sometimes. It infuriates me. I shouldn't have to sit and endure two children screaming for no reason. My other children shouldn't have to endure two children screaming for no reason.
And more importantly, my children screaming shouldn't be experiencing whatever the hell it is that is making them scream.
That's the thing though. You don't know what's wrong. IT COULD BE NOTHING. THEY MIGHT LIKE THE SOUND. It's like some sick joke, see that child sobbing hysterically? Nothing wrong with him. Just having a sensory moment.
As a mother, it's devastating. My child is hysterical. And I cannot fix it. There should be a fix. I should be able to hold them or sing to them or get them candy and there just IS NO FIX.
I ended up taking a shower and standing in the shower and sobbing. Afterward apologizing to Miles for yelling at him, and for his autism. I know I didn't "do" it, but still, I made him. Any mother with a child that has a congential problem will probably tell you, the guilt of that eats at you every minute of every day. "What did I do wrong?" Probably nothing. Or I passed on bad genes and I couldn't help it.
Sunday ended with early bed times and Monday school started back up. Life is normal again.
I'll have another day like that, some day sooner rather than later. And I'll cry a lot.
Because it's all I can do.
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Monday, May 16, 2011
Progress Comes In Many Forms
The Norm: I walk the first boy to the bus at the end our driveway every day at 6:50 ish. He has serious Mommy attachment issues, does my Miles. He holds one or both of my hands everyday as we walk down the driveway, often burying his face against my hip as we walk. He's ok as long as I walk all the way down the drive right to the door of the bus with him.
Progress Comes In Many Forms
The Norm: I walk the first boy to the bus at the end our driveway every day at 6:50 ish. He has serious Mommy attachment issues, does my Miles. He holds one or both of my hands everyday as we walk down the driveway, often burying his face against my hip as we walk. He's ok as long as I walk all the way down the drive right to the door of the bus with him.
Friday, April 29, 2011
Thursday, February 10, 2011
You HAVE To Try
You HAVE To Try
Thursday, April 29, 2010
Now THEY Are Six

We didn't know the challenges and obstacles that had been laid like mines in their little brains, waiting to go off and teach us the meaning of the word HARD.

It has not been a fast six years.
But you know what? They are a joy really. They are funny. They are learning to talk. And today is the special day that they became part of our family.
No matter what, we are so happy they are here.

Happy Birthday Miles and Charlie. We love you so.
Now THEY Are Six

We didn't know the challenges and obstacles that had been laid like mines in their little brains, waiting to go off and teach us the meaning of the word HARD.

It has not been a fast six years.
But you know what? They are a joy really. They are funny. They are learning to talk. And today is the special day that they became part of our family.
No matter what, we are so happy they are here.

Happy Birthday Miles and Charlie. We love you so.
Thursday, April 08, 2010
Put Me In Coach


I can DO this, Mother Nature. Put me in. What's the trade off this time? No drugs......well that'd suck but you know what, I'd take it over the c-section I really would. I'd take a deep breath and plung forward that women have for thousands of years and it'd be fine.
I'm not being put in. I've been sidelined, reduced to a spectator in the birth of my own child, my only daughter. It's making me a little bitter, I have to admit. If I brush aside my abject FEAR of surgery, of the recovery, of the pain and suffering I'm going to endure afterward vs. the next to nothing after childbirth.......I'm fucking PISSED OFF that I'm no longer an integral part of this process.
I am not the crew. I am the Enterprise. And that is so not cool.
Does it beat the alternatives? Well hell yeah. I'd rather this than either of us end up dead. But I'm a bit pissed off at fate I have to admit.
And I'm gonna be a huge baby about this whole thing. I'd like everyone to just get their hankies out now because I'm not gonna be brave or tough or nuttin.

I have included random pics from our Twins Club Spring Party for one reason.
They make me happy.
Hope yours was magical too.
Put Me In Coach


I can DO this, Mother Nature. Put me in. What's the trade off this time? No drugs......well that'd suck but you know what, I'd take it over the c-section I really would. I'd take a deep breath and plung forward that women have for thousands of years and it'd be fine.
I'm not being put in. I've been sidelined, reduced to a spectator in the birth of my own child, my only daughter. It's making me a little bitter, I have to admit. If I brush aside my abject FEAR of surgery, of the recovery, of the pain and suffering I'm going to endure afterward vs. the next to nothing after childbirth.......I'm fucking PISSED OFF that I'm no longer an integral part of this process.
I am not the crew. I am the Enterprise. And that is so not cool.
Does it beat the alternatives? Well hell yeah. I'd rather this than either of us end up dead. But I'm a bit pissed off at fate I have to admit.
And I'm gonna be a huge baby about this whole thing. I'd like everyone to just get their hankies out now because I'm not gonna be brave or tough or nuttin.

I have included random pics from our Twins Club Spring Party for one reason.
They make me happy.
Hope yours was magical too.
Wednesday, August 05, 2009
I Don't Wanna Go

I Don't Wanna Go

Friday, May 01, 2009
There Was a Birthday

And there was excitement.

Then there was Chuck E Cheese where there was dinner theater.


Happy Birthday Babies.
They will not always be my little boys. But they will always be my babies.
There Was a Birthday

And there was excitement.

Then there was Chuck E Cheese where there was dinner theater.


Happy Birthday Babies.
They will not always be my little boys. But they will always be my babies.