A Mommy Blog About Raising Men, Not Boys.
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Saturday, January 24, 2009

What a Difference a Doctor Can Make

My friend Michele commented to me last night that I must've been really busy because I hadn't posted in a week.
I think I was pre-occupied.
The twins had their evaluation with our new superfly pediatrician. The entire process took over TWO hours...which is most likely the longest any medical professional EVER looked at them. We sat and talked about what they can and what they cannot do and she made like a bazillion notes.
We've got the paperwork for the testing via the school system now, but more importantly we've got a doctor who wants to aggressivly pursue medical diagnosis and therapy.
She even said she'd call me back with doctors for referrals, doctors who TAKE our insurance.
The tact she says she's going to take is that because HMOs don't LIKE autism as a diagnosis, we have to come at this with every MEDICAL possibility in order to get them diagnosed and make insurance pay for treatment.
So we're gonna see all kinda specialists, all of whom will just happen to have experience with autism in addition to being, oh say, an ENT, or an Audiologist, or say, a psychologist etc.

She's also recommended doing the thing where you remove all gluten, wheat and dairy from their diet. She was pretty honest that all doctors aren't in agreement WHY it works, but that in MANY instances there has been improvement in communication skills.

So we have to figure that out.

Are they autistic? Maybe. Probably. All signs point to yes, we have a developmental delay that seems to lean toward the autism spectrum.

But I think, now, for the first time in a long time, that we're going to be alright. Because we've got a new doctor who doesn't fuck around, and she's going to help us walk down this path.

Thank God.

4 comments:

Anonymous said...

That is awesome! I love it when you find those people in their profession that actually want to try and help you because they love what they do. Sounds like you have keeper.

Sarah, Goon Squad Sarah said...

Hang in there.

And hooray for good doctors!

landismom said...

I'm glad to hear that you have found a doctor that is so willing to work with you, and to manipulate the system on your twins' behalf.

Jhuzen Ketsugo said...

I am so happy you found someone that great to work with!